Requesting registers data

Requests to conduct research with the Rheumatoid Arthritis (RA) and Ankylosing Spondylitis (AS) registers data follow a formal process. This is to:

• Contact the academic team in Manchester for RA registers data or the Aberdeen team for AS registers data to ensure they have the data you hope to analyse

• Read the terms and conditions for data use, and complete the below application form

• Submit the application form (there are three deadlines within any year, which link to committee meetings where your request will be considered)

At their next meeting, the Registers committee reviews applications. The criteria includes:

• The quality of the science

• The experience of the candidates to undertake the work

• The relevance of the data for answering the proposed questions and the feasibility of the analysis

You will then be notified as to whether your request has been accepted.

Please be aware that the length of time from request to approval and then to supply of data can be as long as six months, depending on the complexity or size of the request.

If you wish to submit a grant application, partially or totally based on the use of registers data, then you should discuss this with the appropriate registers team before submitting the grant application.